Patient Networks & Resources

 

www.melanomapatientnetworkeu.org (MPNE) and its growing www.facebook.com/MPNEocular/ are partners of the UM CURE 2020 consortium. Here you can connect with them and other patient resources. 

Consortium Partners

Melanoma Patient Network Europe (MPNE)

Active network of European Melanoma Patient Advocates.
 

MPNE Ocular

MPNE's Ocular Melanoma Patient Group and closed facebook page.

Other organizations and resources

OcuMelUK
OcuMelUK is a UK charity that supports anyone affected by ocular melanoma. 
www.ocumeluk.org
OcuMelUK's facebook page 
www.facebook.com/OcuMelUK 


Cancerhelp
A website for patients, with good advice on coping with cancer.
www.cancerhelp.cancerresearchuk.org//

Cure OM
CURE Ocular Melanoma (CURE OM: Community United for Research and Education of Ocular Melanoma) is the United States Melanoma Research Foundation's initiative to increase awareness, education, treatment and research funding of ocular melanoma. The Director is Dr Sara Selig, whose husband died of uveal melanoma. 
www.melanoma.org

Eye Cancer
A website created by Dr Paul Finger, an ocular oncologist in New York. 
www.eyecancer.com

Eyecancerforum
A discussion form organized by patients.
www.eyecancerforum.co.uk


RNIB
A website with information and good advice on coping with sight problems. 
www.rnib.org.uk


The US National Cancer Institute
An excellent site with information for doctors, nurses and patients. 
www.nci.nih.govwww.nci.nih.gov

Uveal Melanoma Guidelines
www.melanomafocus.com

PubMed
A database of summaries of medical literature.
www.ncbi.nlm.nih.gov/PubMed